We had our long awaited neurology appointment today for Calleigh. It is really the only specialist she hasn't seen except for Endocrinology but we are seeing them Friday. With all her issues my amazing pediatrician wanted me to see the neurologist so we didnt' have any more unwanted surprises. My greatest fear was something was wrong neurologically and that was causing some of her delays. I went alone to the appointment and realized as I was walking in I really wish I was not alone. It seems to be trend for me to learn really bad news when I am alone. But I couldn't change it so I went in to meet the doctor.
The doctor was down right amazing. She spend over an hour and half with me and Calleigh. She went over every little thing I could even think of and took time to answer all of my questions and concerns. Bottom line, there is no reason to think Calleigh won't be just fine. Yes, she is delayed (mostly her gross motor skills) but the doctor thinks she will catch up. Her delays are not being caused by any neurological problem. Her brain MRI showed nothing to indicate any issues. She does have benign hydrocephalus but it't not on her brain so it requires no intervention. It's actually between her skull and skin which is why her veins in her forehead are more prominent than most peoples. It was resolve itself. Lots of people have it but don't know it because they never had a reason for a brain MRI.
Her ability to crawl, walk etc is from having some low tone but NOT coming from her brain. This is HUGE. This means her brain knows what to do and will eventually do it.
THe doctor actually told me she was surprised at how much Calleigh could do for all she has been through this year. On paper, it looks pretty bad. She was not expecting the happy, laughing, social, smiling baby she encountered! Calleigh was her usual charming self. She flashed her dimples like a champ and won over another doctor and staff!
We will continue with her physical therapy and push her to get stronger and stronger. All in all it could not have gone better. I am going to sleep a little better tonight....