Triplet Princes and a Princess

Triplet Princes and a Princess

Our journey to hearing with Cormac while living our life with triplet boys and a baby girl.

Wednesday, March 10, 2010

Interesting Article

Kids with cochlear implants rank quality of life equal to normally hearing peers
ANIWednesday, February 24, 2010 22:00 IST Email

WASHINGTON: A new American research suggests that children with cochlear implants (CI) have the same quality of life (QOL) as their normally hearing (NH) peers.

A cochlear implant is an electronic device, which restores partial hearing to the deaf. Surgery is performed to implant it in the inner ear and then a device worn outside the ear activates it. The device does not make sound louder or clearer but bypasses damaged parts of the auditory system and directly stimulates the hearing nerve, enabling the deaf or severely hard of hearing individuals to receive sound.

Previous studies have indicated that deaf children feel less socially accepted, experience more difficulty in making friends, and show greater adjustment problems than their hearing peers.

However, the findings of the new research, a cross-sectional study of 88 families with CI children from 16 U.S. states, differ from traditional conclusions.

The study team used a generic QOL questionnaire. The subjects were divided by age of the child when they filled out the questionnaire - an 8-11-year-old group and a 12-16-year-old group.

Both parents and children filled out the QOL questionnaire, with the parents assessing their child. The study group was then compared to a control group of 1,501 NH children in fourth and eighth grades.

Results of the questionnaire showed that overall QOL did not differ between CI and NH groups. However, examination of individual subscales disclosed that 8-11-year-old CI children rate their QOL with family less positively than their NH peers.

Younger CI recipients rated overall QOL more positively than the older 12-16-year-old CI group. But, the authors believe that this could be a reflection of standard adolescent behaviour.

By and large QOL showed a significant inverse association with age at implantation, and a significant positive correlation with duration of CI use in the 12-16-year-old group.

The authors say that even though prior studies have appraised QOL in CI children, this study adds additional perspective to the literature, as it combines assessments by the actual CI recipients and parents, and it maps the results in context with NH children.

The research also demonstrates that parents proved to be reliable reporters for their children in areas where they could observe and participate.

The authors write: "For profoundly deaf children who regularly use a cochlear implant, feelings about life overall are no better or worse than their hearing peers. These findings indicate that cochlear implantation has a positive effect on certain psycho-social domains."

The study has appeared in the February 2010 issue of Otolaryngology - Head and Neck Surgery

I think I have to agree with this article. Our house is sort of a daily study in the lives of children the same age, with one who happens to be deaf. His quality of life, in my opinion, is no different than that of his brothers. I think if you asked him he would feel the same. He is just one of the kids. No different than anyone else. I hope as Cormac grows older he always feels so comfortable in his own skin. Just yesterday a teacher at his school (not his teacher) approached me to tell me she has never seen a child with such a "zest for life" who wanted to learn everything and who clearly is "running the show" and "the leader of the pack". (all ina good way) Nothing could make a mom feel better.

Melissa, thanks for your comment on the lip reading post. I agree, Cormac is part of a new generation of deaf kids. They are paving the way for future children just like you did many years ago. I think it's hard for different generations to fully comprehend these kids don't actually need any further assistance than their implants. Truly, an amazing experience I myself find hard to believe at times BUT we are living it every day.



That is interesting - thanks for sharing. I don't think William's QOL will be any different than a hearing child's, just based off hearing. He now hears as well as my other children. The only drawbacks he might have are things like swimming and baseball, or other things were he might have to wear a hat or where it would be hard to keep his processors on.

Anonymous said...

Hi Jennifer!
Great article! It has only been 3 months since Samantha's activation and what a change in her world it has made. She is 16 months and when around other kids she gets right in the mix. Sam wants to be in the middle of the circle and in the front of the line. I agree with the article that there is no difference in the quality of life between children who have CI and those who are hearing. I also believe that we as parents have to bring up our children with cochlear implants that although they are deaf they are no different from anyone else. I have taught my four year old that Sam has a cochlear implant to help her hear just like some children wear glasses to help them see. Again Great article!!

Jill Gentile