Triplet Princes and a Princess

Triplet Princes and a Princess

Our journey to hearing with Cormac while living our life with triplet boys and a baby girl.

Thursday, January 20, 2011

Little Broken Heart....

We went for our usual four month check up with the cardiologist yesterday. Calleigh was born with two holes in her heart. A VSD (Ventricular Septal Defect) and an ASD a(Arterial Septal Defect). The VSD closed on it's own. The ASD is another story. It has not even started to close. It is considered a moderate size hole.

When I first was told all this information when she was born it was really not much to worry about. Seems, things are a changing. The ASD will more than likely require surgery to repair it. Seriously, can't this poor girl catch a break? Well, I guess if I want to look on the positive, the VSD closed and that is harder to repair than an ASD. Not much but I really do try to look for the good.

It is not anytime soon. It probably won't be for another year. Just gives me a year to worry about upcoming surgery. The surgeon wants her bigger. It is not affecting her right now so it's not an emergency. He likes them to be 30-40 pounds. I joked she might not be that big until Kindergarten. She is barely 20 pounds.

Then he told me WE, as in me and Frank, can decide which type of surgery we want her to have. Really? Let me consult me medical degree hanging on the wall. Right....I DON"T HAVE A MEDICAL DEGREE. The choices are open heart surgery. The big shabang. Cutting her chest, stopping her heart while they sew it up. Weeks of recovery. BUT that's it. We know it's fixed forever. Or we can do non invasive where they go through her groin and put a umbrella like device inside her and open it up to seal off the hole. It's much easier on her and she could come home the same day or next day. Not much recovery. I guess the downside to this second option is there is no real long term information on how long this procedure will last. There is no reason to think it WONT last but all the same they haven't been doing it long enough to know all the details.

So that is where we stand. Calleigh's little heart is still broken. My heart well, it breaks a little more each time she has to endure something else. I honestly, thought we were DONE. That said, we are so lucky she is progressing and has really gotten over all the issues she had. It can always be worse.

1 comment:

tammy said...

Glad to hear the good news that the one hole closed up, so sorry to hear that the other didn't. I couldn't imagine having to make the decision on what surgery to have, but I'm sure your hearts will lead you all in the right direction. My prayers are with you and your sweet girl!