Triplet Princes and a Princess

Triplet Princes and a Princess

Our journey to hearing with Cormac while living our life with triplet boys and a baby girl.







Showing posts with label IEP. Show all posts
Showing posts with label IEP. Show all posts

Thursday, March 26, 2009

Never a dull moment...

I wound up in the hospital on Tuesday. Who send having a singleton baby would be easy? LOL I actually fell down the stairs going into our family room. I was not hurt and the baby is fine but I had to go to the hospital to be checked. Seems it caused me to have contractions. Actually, I was contracting every 2 minutes when I arrives. Luckily, they were productive and were not causing me to dilate at all. I was given some fluids and was kept for monitorng over night and got home at 11:30 last night. I was once again told I have a "steel trap" for a cervix. Just the perfect compliment every girl is lookin for, right?? Anyway, I am home and still having some contractions but they think it's just cramping. I followed up today with my OB and still no change. I plan to take it nice and easy for the next few days and get back to normal. Frank was home today and took care of the boys while I rested EXCEPT I had to run Cormac up to school for his evaluation to start the preschool program at Summit.

He did awesome. Was so social and was yapping up a storm while we were there. We weren't seeing the usual people we know so I was sure how he would do with a new set of people but he did awesome. He ran right into the room with the SLP and I was able to walk right out. He then went into one of the preschool classes. I was able to observe him through the window. He ran right into the class with teachers and students he didn't know. They were sitting in a semi circle reading a book. He sat himself down right next to someone and said "hi, my name is Cormac". He seemed to really love it. I am hoping this is true when he starts in a few weeks.

So, I am off to lay down and rest. Have to take advantage of the time Frank is home. The boys are playing play doh which keeps them occupied for a good while. Bed time is only about an hour away.

Wednesday, March 11, 2009

We had our IEP!

Frank and I met with the school district on Tuesday. If you are wondering what all the noise is it's me doing the "happy dance". The meeting could not have went any better. Our district was open to sending Cormac to Summit Speech until the fall. This really is what is best for him and in the long run will help minimize what services he will need in his future. While I am new to this process and was totally terrified and overwhelmed from hearing many horror stories over the past couple of years from other parents, that was not our experience. While our district has no experience with a bilaterally implanted cochlear implant child it is obvious they are willing to learn and want what is best for Cormac. All I hoped for was a way for it to work for all of us. I wasn't thrilled about being the first cochlear kid in district but we can't change that situation. Hopefully, by working with Cormac another family will benefit from our experience with the district.

So, a big huge HOORAY is warranted.

I honestly didin't realize how stressed and worried I was about Cormac until after it was over. I swear I feel like a huge weight has been lifted from my shoulders. Cormac continues to amaze us with his abilities and I am sure all that meet him will feel the same. The stronger the foundation we build for him now the stronger he will be in his future!

Wednesday, February 25, 2009

Ok, where do I start???

Today I met with the director of Summit Speech School. Cormac receives his teacher of the deaf sevices in the house from Summit and also attends a group class once a week at Summit. I wanted to meet with her to discuss what she thought was best for Cormac as he turns three and is no longer eligible for early intervention and is transitioned over to the local school district.

The conversation started with her telling me that Cormac is going to be just fine. She was impressed with what his reports said. She even said she thought might have been done incorrectly and rechecked them becasue she could not believe the progess he has made. Basically, he went from saying nothing, to 2 words and then made a huge jump to long sentences. She said he is a child who will not have trouble learning to read (an issue for some deaf/hearing impaired children). She said he uses words that are normall difficult for deaf children to learn and have to be taught. (any, some) and he understands complex and even abstract concepts. She could not be more pleased with his progress. She said if I had been waiting for a moment to sigh in relief, this was my moment!

Ok, can you say excited??? I know Cormac is doing well. I know how hard he works. I know how much effort goes into our everyday lives to MAKE SURE he is getting what he needs. But, I am his Mom so I always think maybe he could be doing better. To hear a professional tell me he is doing better and that he is "almost right there", meaning caught up to his actual age (he is 34 months old. His receptive langugage is at 33-36 months. His expressive is at 31-33 months) when he has only been hearing 18 months is just such wonderful news. I am so proud of Cormac. He is truly amazing.

My big dilema about what to do with him for school is hopefully solved for now. I still have to wait for the school district but I think they will be open to Summit's recommendations. When he turns 3 in April he will attend Summit for mornings only (not full day). This way he can still spend the rest of the day with his brothers and he won't feel so separated from them. I am going to have a hard time letting him go 3 hours a day but it's what is best for Cormac. We are going to do this for 6 months. In September all the boys will start preschool at a mainstream preschool. COrmac will receive support services. But by giving him 6 months at Summit will just solidify the foundation he already has built. Since Ciaran and Colin can't start school until September its not like they will go without him.

My biggest concern was the next 6 months. I knew he had to continue services but didn't want him in the preschool disabled in town. It is not the appropriate place for him. This decision gives me the best of both worlds!


AHHHHHHHHHHHHHHH!!! That is my sigh of relief! I feel OK about this and am happy with it.

On a different topic, I was asked to write Cormac's story for a website called thedeafblog.co.uk The woman who contacted me had read this blog and wanted thought it would be a good story for other parents to hear and perhaps it will help a parent of a newly diagnosed deaf child. I was more than happy to write the story. I am by no means a writer. I just wrote how I feel and what our lives are like having triplets and one of them being deaf. So, check it out if you would like to read it. Just click here

So, does that mean I am a published author??? LOL!

Thursday, January 8, 2009

The IEP Process begins

For those that are not aware and IEP is an individual education program. Cormac will need an IEP to attend school. Up until his third birthday he receives services through early intervention. I love early intervention. He has been receiving services since we found out he was deaf. For longer than I can remember he has received two hours a week at home with a Teacher of the Deaf, Joan. I also bring him one day a week to Summit Speech School for a group class. Why this all has to change at the young age of three is beyond me but I don't get to make those decisions.

At three years old the child is now handled by your local school district. Our local school district set up our identification meeting. This meeting is to determine if Cormac is eligible for services. He qualifies because he is deaf so that was not an issue. Next we have to discuss his education needs. This is where it gets tricky. Our district has never had a deaf child let alone a child with bilateral cochlear implants. They have no one in district has EVER worked with a child with cochlear implants. The speech therapist is a nice lady but has no direct experience with deaf children. Working with children with speech delay and a deaf child are two different things. Most people do not understand.

The only program in town is preschool disabled. This class contains all children of all disabilities. This is so not where Cormac belongs. He is not academically delayed or cognitively delayed. His fine and gross motor skills are perfect. I don't know many other two year olds that can write their letters. His only delay is in his expressive language and he is not really far behind. But his delay comes from not hearing for the first 13 months of life NOT from any other issue.

Cormac should be in a mainstream preschool along with his brothers and get support services. I am not sure how we are going to accomplish this task. But we will. I have been dreading this process for a long time. With a district with no experience at all I am hoping it can be a learning process for both sides. We can help them to learn what a deaf child with implants needs. Every child is different but at least int he future they would have some experience.

I have spent hours researching and seeking information to show the district what is in Cormac's best interest. There are lots of laws that protect him and I am familiar with them all. I will make sure to have copies of them with me when they make a recommendation of preschool disabled and prove to them this is not the least restrictive environment. Luckily, NYU has an education specialist and she is willing to come and talk with the district. I am hoping her expertise will be enough to make our case. All I want for Cormac is mainstream preschool with support services. Since they don't have qualified professionals for support services they need to contract with people who are qualified.

I knew it was not going to be a simple process. I was prepared for it but I did not think they would have no clue what so ever. Oh well, just another bridge to cross in our journey.