Tomorrow Calleigh will have an MRI of her brain and pituitary. She needs to have anesthesia because she would never stay still long enough for the test. (It will probably take about 2 hours or so). This will be the 6th time Calleigh will have anesthesia. It scares the crap out of me and I really wish she didn't need it. We are fortunate because three different doctors wanted an MRI and we coordinated so one MRI would cover all of them.
Calleigh's ENT wanted an MRI to take a look at her ear canals. She is still testing with mild conductive hearing loss. He wants to check out the structure of her ears. The placement of tubes in her ears could even be the cause of the mild loss. I am hoping it's the tubes. Ciaran and Cormac have sensioneural hearing loss and not conductive loss.
Calleigh's neurologist wanted a repeat MRI of her brain. She had an MRI of her brain when she was six months old. It showed she had benign hydrocephalus. Everything else was normal. Since we are still trying to get to the bottom of the balance issues her neurologist wants to take a look at her again.
Lastly, Calleigh's endocrinologist wanted to take a look at her pituitary. She is still not a growth chart for height. She is leaning towards starting growth hormone and we need to look at what is going on first.
I am hoping to get some answers about her balance and her very low tone but am not counting on it. Calleigh also needs blood work for creatine kinase. It could also give us some answers on her low tone.
Tomorrow will be a long day. The smooch can't eat anything after 8:30am. For those that know her well you know the girl likes to eat. However, in the past she has never been too bad while being deprived a meal. She can hang. She is tough. Our only request will be for milk and we will try our best to keep her busy. She doens't go into the MRI unti 2:30 in the afternoon. We only got this appointment so quickly because we were on a wait list. Our actual appointment would have been December 12th!
Keep Calleigh in your thoughts and prayers if you could.