Today we headed into NYC to bring Cormac to a genetic specialist to see if we can determine the cause of his hearing loss. There a few genetic links that cause hearing loss most notably connexin 26 and connexin 30. In the big picture it really doesn't matter why he is deaf. I think it is important for him to know when he is older so he is aware. If it does come back as genetic hearing loss we will know any child we have has a 25% chance of being born with hearing loss or deaf. So, I guess since we are having anothe baby it will be good to know so we know exactly what to do when the baby is born. We won't have the results for 4-6 weeks.
As for Cormac he was is cute little self today. The genetic doctor asked if it was OK if some of his students stayed in the room while they talked to us. We agreed. They were so taken aback by Cormac. They couldn't believe how he was talking. The one Dr said "I want to stay in here all day with this guy". I can't tell you how many times they commented on how clearly he spoke. I refrained myself from repeating everything he said to see who understood him. And ya know what? They all did! He did have to have blood work and it broke my heart because he actually shed real tears while they did it. The Dr. was awesome and it only took one try so that was a relief. He clearly and loudly said "I don't want you to do that" I thought the band aid at the end would be like a present but he again said "I don't want a band aid. Pull down my sleeve". He was fine in a matter of seconds. But for a Mommy to have to hold her baby while he cries from a needle. Well, it just sucks.
Frank and I dropped Ciaran and Colin off at my mom's house on our way into the city. They love it there and were glad to stay. Only problem: Cormac wanted to stay also and cried because he had to leave. That's hard to handle. We resolved that with pancakes and hash browns. He was smiling away.
My Mom met us back at our house to drop off the boys for lunch and nap. They were so excited to tell me the has a "prise" for me. Which translates to a surprise. My Mom took the both of them for hair cuts. They needed them desperately but I just haven't had the time to do it. And I hate when Colin and Ciaran's hair gets long. Drives me nuts. They look so handsome with the little hair cuts AND it's one less thing I need to do this week. Apparently, they behaved very well at the barber. I might have to start taking them to this new barber. They liked him and he only charged $5 a kids. I pay $14 a kid where I take them. Or better yet maybe my mom can continue to take them and it's one less thing for me to do :)
1 comment:
Do you have hearing loss in your family?? We also have no idea what caused Colton's hearing loss. I would love to know.
And per you comment whatever extra parts you have to spare we will take them!! I will e-mail you my address. If you need $$$ for the items or postage let me know.
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